In January 2003, the National HHT Centre opened in Cork, based at The Mercy University
Hospital. This is the first centre in Ireland dedicated to the assessment and management of
families with HHT. The Centre is staffed by medical and paramedical staff in The Mercy University
Hospital, Cork University Hospital and The South Infirmary/Victoria Hospital. Its principal
mission is to identify patients suffering from HHT, to assess all relevant family members of these
patients with a view to establishing whether or not they too are affected and identifying what
manifestations of HHT are present in each person affected. Appropriate management of all HHT
manifestations will be offered, to treat symptomatic aspects of the condition and to prevent serious
complications of occult vascular malformations (eg: monitoring of and, if appropriate, embolization
We invite anybody suffering from HHT, or who has an affected family member to contact the Centre.
We also welcome contact from anybody who suspects they they may be affected, and we would be happy
to arrange review by the Centre's doctors, or send information regarding the condition and the
Centre's activities to any individual's own physician.
The National HHT Centre is supported by The Grace Nolan Foundation, which is in turn affiliated to the
HHT Foundation International. We are indebted for the support for our activities offered by the HHT
Foundation and The Yale University Vascular Malformation Centre. Relevant contact information is as
National HHT Centre phone line: (021) 2305040 voice mail: please leave your name and contact
number, and the Centre's coordinator, Margaret Murphy, will contact you.
National HHT Centre coordinator email: firstname.lastname@example.orgPlease do not hesitate to email us with any queries.
Grace Nolan Foundation website: www.gracenolan.comVisit the Grace Nolan Foundation website for an insight into our work and goals.
HHT Foundation International website: www.hht.org This is a very useful source of
information about HHT.